Urban Saboteur Posted December 30, 2011 Share Posted December 30, 2011 Hey Guys, Just an update for you, there may be a slight delay in me getting back to you on forum posts or private messages over the next fortnight or so. For those of you who don't know I suffer from Crohns Disease and have done since i was 18. In the last 4 weeks i've had a relentless bout of flare ups which i've tried to control using various techniques and medications, usually ones that work and bring it back under control. At the moment i am day to day, i'm able to eat but i still can't turn the corner to recovery so i've made the decision to give this until Tuesday (3rd). If there isn't any significant improvement i'll be admitted to the M.A.U for tests. Assuming they do find out what's wrong and have to treat me i could be in for 2-3 weeks or longer depending on how long they take to sort it out. I'll try my best to get back online Tuesday morning and update this once i know for certain, obviously i'm hoping it wont actually come to this and the medication helps me recover properly by then, i just thought i'd make a point of posting up here so that people were not wondering why i'd dropped off the face of the earth I hope everything is well here on the minimate forum and you guys continue to collect awesome minimates, i'll hopefully be more active here again once i'm better. In friendship Rich Quote Link to comment Share on other sites More sharing options...
dj87 Posted December 31, 2011 Share Posted December 31, 2011 I have to admit to knowing very little, if anything about Crohns, so I've just had a little look up. It all sounds very unpleasant to say the least, and sincerely wish you all the best, and hope things get back to a little closer to 'normal' asap. I'm sure everyone on here that are waiting on replies, or you'tr sorting trades with, etc. will completely understand, and be more concerned with you getting yourself feeling a little better. Keep us updated as to how you're doing, but don't let it get in the way of recovery, y'hear? Quote Link to comment Share on other sites More sharing options...
DarkRedShadow Posted December 31, 2011 Share Posted December 31, 2011 I too like dj had to search it up and OWW,I really hope you get better mate! Quote Link to comment Share on other sites More sharing options...
Mirymate Posted December 31, 2011 Share Posted December 31, 2011 Hey, we appreciate your enthusiasm and I know as well as anyone the pleasant diversion from life this board can be. BUT you get to feeling better. From what I understand bad flares can be a living hell, so you do what you need to get better. We'll keep you in our thoughts and prayers, man. Quote Link to comment Share on other sites More sharing options...
handsomedevil Posted December 31, 2011 Share Posted December 31, 2011 Hang in there, US... Quote Link to comment Share on other sites More sharing options...
Mattallica Posted December 31, 2011 Share Posted December 31, 2011 sorry to hear that, take care and feel better quickly Quote Link to comment Share on other sites More sharing options...
MINI_MYTE Posted December 31, 2011 Share Posted December 31, 2011 Hope you rebound from this. I know what a bitch Crohns Disease can be. Take care man. Quote Link to comment Share on other sites More sharing options...
boyd Posted December 31, 2011 Share Posted December 31, 2011 My sister-in-law has Crohns, so I can imagine what you're going through. My thought are with you - hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
jcastick Posted December 31, 2011 Share Posted December 31, 2011 Best wishes to you sir, hoping for the best of recovery for you! Quote Link to comment Share on other sites More sharing options...
khonshu knight Posted December 31, 2011 Share Posted December 31, 2011 Here's hoping for a speedy recovery, hope things go well. Quote Link to comment Share on other sites More sharing options...
buttheadsmate Posted December 31, 2011 Share Posted December 31, 2011 Damn that's bad news ....I'd parceled up your next batch of Minimates & you've not paypaled me yet :sad: Seriously though ......you'd let me know about your situation in our recent PMs & the likely cause for its flare up, trust me when I say that I really do understand & it illustrates what a nice guy you are . I'm confident that you'll soon be up & about & fighting fit having left this episode to history .....we can then work on the real problem because supporting Manchester United must be truly awful :biggrin: All the very best Rich, Rob. Quote Link to comment Share on other sites More sharing options...
dj87 Posted December 31, 2011 Share Posted December 31, 2011 ....we can then work on the real problem because supporting Manchester United must be truly awful :biggrin: All the very best Rich, Rob. ohhhh dear ohhhh Rich, for shame... I hope today was not too painful for you Quote Link to comment Share on other sites More sharing options...
infinte fathom Posted January 1, 2012 Share Posted January 1, 2012 Sorry to hear about this, All the best, Liam Quote Link to comment Share on other sites More sharing options...
MsMarvel fan Posted January 1, 2012 Share Posted January 1, 2012 Sorry to hear that. I hope they get you fixed up soon. Quote Link to comment Share on other sites More sharing options...
Nessex Posted January 2, 2012 Share Posted January 2, 2012 A mates sister has Crohns . . . a flare up must be the worst way to come into the new year. My thoughts are with you mate. keep us in the loop and let us know if there's anything we can do. xx Quote Link to comment Share on other sites More sharing options...
ImABarRoomHero Posted January 2, 2012 Share Posted January 2, 2012 Hope you feel better dude! Quote Link to comment Share on other sites More sharing options...
Urban Saboteur Posted January 2, 2012 Author Share Posted January 2, 2012 Hey Guys, well I promised an update so here it is, i'd originally planned to leave this until Tuesday in the hope that i'd be able to turn the corner and not have to go into Hospital. I have been taking Prednisolone Steroids now for about 2 weeks, it's usually brought under control by now and i am still in pain and passing alot of blood. (not usually a good sign) I seem to be alright from the morning until about evening time, when the illness seems to cause absolute havoc with my gut and intestines. This actually all began around the last week of November, so i've tried techniques and various things to bring it under control, my one big concern right now is that what usually does work isn't working, when i spoke to the Gastroenterologist on the phone before Christmas she explained if it was an infection that caused the Crohns to flare up, Steroids wont touch it and i'd need something else to stop the infection first. I'm assuming given my current symptoms and what i am now faced with, that is to be the case, i'm still second guessing though and without having a full investigation via medical care i'll not know properly and just continue to deteriorate. I made the decision last night to monitor things from this morning onwards and if they are no better i'll be admitting myself to A&E this afternoon/evening, from this point they'll put me on the M.A.U (Medical Assessment Unit) here they will keep me and monitor me until a bed becomes available on one of the wards, by which point i am hoping they'll take blood tests. I wanted to update you all, primarily so that you are made aware of my situation, i dont know how long i will be in hospital for but this forum has become my second home of the last 5-6 weeks and i love it here, when i do get out i'll definately post up and let you all know of my progress. I am guessing it will be 2-3 weeks, but if it's as serious as my first admission it could be longer. Keep talking and collecting minimates and thank you all so much for your support and get well messages, i hope my absence from the forum isn't for too long and we can all chat again soon. In friendship Rich Quote Link to comment Share on other sites More sharing options...
nate_studio Posted January 2, 2012 Share Posted January 2, 2012 Best of luck, Urban Saboteur! I've heard how bad it can be with Crohns and I know hospitals are no fun. You know our thoughts are with you! Quote Link to comment Share on other sites More sharing options...
Urban Saboteur Posted January 3, 2012 Author Share Posted January 3, 2012 Hey, I was discharged from Hospital late last night I underwent some mandatory tests, I will say that given my symptoms over the last week or so I was becoming increasingly concerned with my bodies ability to bring the illness back under control, so going to the MAU to have tests done if anything put my mind at rest. They took a Urine Sample, done a chest & abdomen x-ray and also took some blood tests, monitored my blood pressure and the doctor assessed me as to whether i should be admitted to a ward. He found that although there is an underlying problem with a crohns flare up, it is higher up in the gut, and the medication i am taking is the best it possibly can be, for the stomach aches i've been getting i am allowed to continue to take paracetamol course as a painkiller, in the mean time i am discharged to arrange an appointment with my specialist Gastroenterology Nurse for a Colonoscopy. Whilst this isn't immediate success, it sort of is and it sort of isn't. I am relieved the tests all came back positive, that my vital signs, abdomen and chest are showing no signs of strain from prolonged use of an Immunosupressive drug, that there is no obvious serious underlying problem in my blood test results and that this episode is a Crohns Flare up. At this stage I just have to continue doing what I have been doing, i'm still getting abdomen pain in the early hours of the morning and its effecting my sleeping, whilst this is a discomfort for me it's something i will have to battle through until my appointment is moved forward, I can do that this morning via telephone. Thanks to everyone for their continued messages of support, you guys have been really awesome. I'm hoping now that with an appointment with the specialist they can investigate this properly (the MAU team aren't qualified and dont have the neccessary means of doing a colonoscopy there and then) so its really down to my resolve and persistence. I did turn the corner yesterday while in the MAU Ward, i didn't suffer from abdomen pain for about 9-10hrs. So maybe the Paracetamol is finally getting hold of the pain properly. I just hope in a matter of a few days i can begin full recovery and come off the steroids and manage my life back to some normality. In friendship. Rich Quote Link to comment Share on other sites More sharing options...
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